This post will be updated throughout the week. Check back often for the most up-to-date information and requests for prayer.
March 21, 2020
3:00 p.m. – Been a much better day pain-wise for me. They ended up putting me on a more regular dose of morphine, instead of “as needed.” That has help overall with the pain, and allowed me to talk again and to swallow, which means I can drink water, protein shakes, and even ate some applesauce. Inside my mouth is still a briar patch though, and the mucositis hasn’t appeared to have peaked just yet. So please keep praying that these sores go away. Other than that, gracious affection for the people of Redemption Hill continues to overwhelm me when I hear of how they continue to surround, encourage, and reach out to Keri and the boys. “I thank my God in ALL my remembrances of you” (Philippians 1:3). Your simple acts of service are a means of grace to me, spurring me on to continued gratitude to God for all the mercies he has shown me; as well as earnest prayer for my family, my Redemption Hill family, and the family I am leaning into here in my MCV cell. With this new site Ryan created for me, I hope too better keep you posted of some of the smaller things around here, instead of just relying on quick updates like this, or longer posts.
March 20, 2020
10:00 a.m. – Good news/bad news sorta morning so far: it’s been over 15 hours since my last fever, so that seems to have subsided. They confirmed it wasn’t staph, but a more common mouth bacteria sorta thing…perhaps associated with my mucositis. Mucositis is the worse it’s been in days…I fear some of the Tylenol I was taking for the fever was masking some of the pain. It is pretty unbearable right now. Completely debilitating. Can’t swallow or drink anything. The low dose morphine shots I’ve been taking helps some for a time (about every 6 hours or so), but the next step is to go on a drip…which scares me a little.
March 19, 2020
5:00 p.m. – Back in my room after my (hopefully) last lumbar puncture. It went terrific agin, but I’m still crying. So thankful right now. Thank you for your prayers. They continue to be felt in the comfort of God I feel, and the strength and peace of Jesus that continues to permeate these hallways. Reflecting on the undeserved mercy I have received in all this. Thankful for a God who has mercy on me (Romans 9:16). Thankful that he has chosen to make known the riches of his glory to me, a vessel of his mercy (Romans 9:22-23). So undeserved. So grateful right now. It’s putting a lot of things in perspective for me. Pleasure or pain right now, it’s all undeserved mercy
8:00 a.m. – Thank you for all your prayers the past 2 days. They have been “felt” and appreciated. Slept pretty good last night (Thank God for morphine). I feel like I’ve turned a corner with the mucositis (ulcers) I’ve been suffering with, which is a side effect from the chemo treatments. Overall, it feels better, but still covet your prayers when it comes to these being completely healed. I’ve continued to be in and out of fever overnight, so pray whatever this infection is gets figured out soon. Still weak and fatigued, from not only the fever, but simply not being able to eat much past few days. I’ve choked down some protein shakes, but my purely liquid diet as of late can’t be helping my fatigue. Still scheduled for my last lumbar puncture and spinal chemo treatment today, so please pray that continues to go well: same previous team, spinal ooze, relatively quick and pain free.
March 18, 2020
9:00 a.m. – Better night sleep-wise. Fits and spurts. Developed a fever (infection) around midnight which caused them to spring into action. Went away around 4:00 a.m. Got back up with a higher fever. So they have shut down visitation for me (with maybe the exception of Keri). Mouth continues to burn with these ulcers. Hard to swallow now, so I can’t suck on water. They put me back on fluids. I’ll probably have to do another lidocaine rinse later so I can try and take some sorta protein shake down. Other than that, weak from fever. Weak from not eating. They’ve kept dangling a morphine drip in front of me, and that is becoming a little more appealing at the moment. I’m basically on “chair rest” at the moment. Can’t get up without help. Appreciate all the prayers you can send my way today.